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About Indo US Bridging RARE Summit 2024

Connecting the Global Rare Disease Community

We are excited to invite you to the Indo US Bridging RARE Summit 2024 to be held on Nov 16-18 in New Delhi, India.

Organized in collaboration with the All India Institute of Medical Sciences, New Delhi, the #BridgingRare Summit 2024 will feature an exciting lineup of prominent speakers from India and the US, workshops, and a Gala dinner and Award Ceremony.

Why join us?

Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D

Highly informative and educational sessions

Great networking opportunities

Special focus on India and emerging markets

The event will take place in HYBRID mode with live streaming of sessions and an excellent online networking platform.

about-us

Indo US Bridging RARE Summit 2024 is a Hybrid Event

Live and in-person at Indian National Science Academy (INSA), New Delhi

Registrations Details

  • Please note that only the Indo US Bridging RARE Summit sessions can be attended virtually. The Gala and Awards Ceremony is an in person only event, and will require your presence at the venue
  • *Valid only if the ticket is purchased along with Summit registration. This rate will not be applicable if tickets are purchased separately at any later point in time.
  • Please note Discount is NOT applicable on Gala Ticket.

Gala and Awards Ceremony

Gala and Awards Ceremony

Indo US Bridging RARE Summit Gala Dinner & Award Ceremony

Get your tickets now

Agenda

*All times are based on Indian Standard Time (UTC+5:30)

Registration opens (1:00 pm)

Pre-conference Workshops (2:00 pm - 5:00 pm)

Co-Chairs

Harsha Rajasimha, Ph.D., Jeeva Clinical Trials

Tshaka Cunningham, PhD Polaris Genomics Inc.

Sowmya Kaur, Navitas Life Sciences (TBC)

Rakesh Lodha, Prof of Pediatrics, AIIMS, Delhi

Co-Chairs

Jean Campbell, Professional Patient Advocates in Life Sciences (PPALS)

Ratna Devi, DakshamA Health

Co-Chairs

Cristol O’Loughlin, RareGivers

Co-Chairs

Debjani Saha, Praveen Gupta Premas Life Sciences

Co-Chairs

Priyankana Mukherjee, PhD, IKP Eden

  1. Inauguration - Lamp Lighting
  2. Bridging RARE Celebration Fusion Music and Videos!
  3. Keynotes
  4. Abbey Meyers Khushi Bridging RARE Awards Ceremony
  5. Entertainment and Gala Dinner

Close of Day 1

Registration Opens (8:00 am)

Co-Chairs

Harsha Rajasimha, MS, PhD, Indo US Organization for Rare Diseases

Madhulika Kabra, MD, All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

Speaker

David A Pearce PhD Chair, International Rare Disease Research Consortium (IRDiRC)

Co-Chairs

Vijay Chandru, PhD, FNAe, FASc, Strand Life Sciences

Ashwin Dalal, MD, DM, Centre for DNA Fingerprinting and Diagnostics (CDFD)

Networking Coffee (Posters and Exhibits) 11:30 am - 12:00 pm

Co-Chairs

Neerja Gupta, MD, DM All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

Alok Srivastava, MD (TBC) Christian Medical College, Vellore

Lunch (1:30 pm - 2:30 pm)

TBD

Networking Coffee (Posters and Exhibits) 4:00 pm - 4:30 pm

Co-Chairs

Madhulika Kabra, MD

Paul Mehta, MD CDC/ATSDR

Networking and Buffet Dinner (6:00 pm - 8:00 pm)

Pre-arranged Bus tours of local attractions and counties to showcase resources and capabilities in the BHCR region.

Close of Day 2

Session Chair

Madhulika Kabra, MD

Speaker

Dr. Peter Marks CBER, FDA

Co-Chairs

Dr. Mathew Thomas, former FDA India

Dr. Raghuvanshi, DCGI (TBC)

Networking Coffee (Posters and Exhibits) 11:00 am - 11:30 am

Co-Chairs

Mathew Pauls, Savara

TBD

Lunch 1:00 pm - 2:00 pm

Co-Chairs

Dr VK Paul, NITI Ayog

TBD

Co-Chairs

Anish Bhatnagar, MD

Dipal Doshi, MBA, Entrada Tx (TBC)

Networking Coffee (Posters and Exhibits) 3:30 pm - 4:00 pm

Co-Chairs

TBD

Closing Remarks and Action Items from Working Groups (5:30 pm - 6:00 pm)

Vote of Thanks 6:00 pm - 6:30 pm

Close of Day 3 (6:30 pm)

Keynote Speakers


Dr. David A Pearce PhD

David A Pearce PhD

Chair International Rare Disease Research Consortium (IRDiRC)
Ms. Meredith Manning, President – The Americas Pharma Essentia USA Corporation.

Peter Marks, MD, PhD

Director Center for Biologics Evaluation and Research (CBER) FDA

Dr. L Swasticharan

Additional DDG and Director (EMR) Directorate General of Health Services Ministry of Health and Family Welfare, Govt of India
Ms. Meredith Manning, President – The Americas Pharma Essentia USA Corporation.

Vikram Karnani, MS, MBA

Executive Vice President and President, Global Commercial Operations and Medical Affairs Horizon Therapeutics

Special Address


AbbeySMeyers

Abbey S Meyers, PhD

Founder and past President National Organization for Rare Disorders (NORD)

Our Speakers


Jean Campbell

Co -founder Professional Patient Advocates in Life sciences

Ratna Devi, MBBS, MBA

CEO DakshamA Health

Anil Raina

General Manager -India, Speciality care, Sanofi

Cristol O Loughlin

Founder and CEO, RaregiversTM

Dipal Doshi

- Entrada Therapeutics

Rakesh Lodha

- All India Institute of Medical Sciences

Atchayaram Nalini, MBBS, DM, PhD

Professor,Department of Neurology National Institute of Mental Health and Neuro Sciences (NIMHANS)

Prof. Sheffali Gulati MD, FRCPCH (UK), FAMS, FIAP, FIMSA

Professor, Program Director, DM Pediatric Neurology Programme All Indian Institute of Medical Sciences (AIIMS), Delhi

Jaime Reynolds, MPH

Epidemologist Centers for Disease Control and Prevention/National ALS Registry

Present Your Research at the Indo US Bridging RARE Summit 2024

Join an exciting line-up of speakers & presenters!

We invite you to share your knowledge and experience with the global rare disease community.

This is an excellent opportunity for you to showcase your work and expand your collaborative network by interacting with rare disease stakeholders including our eminent speakers and panelists from US and India.

Speaker and Poster Abstract Submissions

We welcome abstracts across a broad range of themes including:

  • Cross Border Patient Engagement
  • Indo-US Comparisons in Care Pathways - Screening, Diagnosis, & Treatment Options
  • Data Privacy and Governance Across Borders
  • Clinical Trials for Orphan Drugs
  • Advances in Regulatory Pathways for Orphan Products
  • DEIA and Globalization for Orphan Drug Research
  • Others

Summit Planning Committee


Ms. Amy Adams, Ph.D.,Institute for Biohealth Innovation, George Mason University.

Amy Adams, Ph.D.

Institute for Biohealth Innovation, George Mason University
Mr. Rich Bendis, BioHealth Innovation and BioHealth Capital Region Forum.

Rich Bendis

BioHealth Innovation and BioHealth Capital Region Forum
Mr. Anish Bhatnagar, MD, IndoUSrare and Soleno Therapeutics.

Anish Bhatnagar, MD

IndoUSrare and Soleno Therapeutics

Ashwin Dalal, MD, DM

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Neerja Gupta, MD, DM

All India Institute of Medical Sciences (AIIMS, Delhi)
Ms. Madhulika Kabra, MD, All India Institute of Medical Sciences (AIIMS, Delhi).

Madhulika Kabra, MD

All India Institute of Medical Sciences (AIIMS, Delhi)
Ms. Reena Kartha, MS, Ph.D., IndoUSrare and Center for Orphan Drug Research, UMN.

Reena Kartha, MS, PhD

IndoUSrare and Center for Orphan Drug Research, UMN
Ms. Juhi Naithani, MBA, IndoUSrare and bGlobal Consulting.

Juhi Naithani, MBA

IndoUSrare and bGlobal Consulting
Mr. John Newby, JD, Virginia Bio.

John Newby, JD

Virginia Bio

Ratna Dua Puri, MD, DM

Sir Ganga Ram Hospital
Mr. Harsha Rajasimha, MS, Ph.D., IndoUSrare and Jeeva Informatics Solutions.

Harsha Rajasimha, MS, PhD

IndoUSrare and Jeeva Informatics Solutions
Mr. Frank Sasinowski, MPH, JD, IndoUSrare and Hyman Phelps McNamara PC.

Frank Sasinowski, JD, MPH

IndoUSrare and Hyman Phelps McNamara PC
Mr. K Thangaraj, Ph.D.,Centre for DNA Fingerprinting and Diagnostics (CDFD)

K Thangaraj, PhD

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Advisory Planning Committee


Isaac R. Rodriguez-Chavez, PhD, MHSc, MSc

4Biosolutions Consulting

Teresa Ginger Davis

Sickle Cell Thalassemia Patient's Network (SCTPN)

Paul Mehta, MD

National ALS Registry, CDC/ATSDR

Dr. Mathew  Thomas

MTT Consulting

Vijay Chandru, PhD, FASc, FNAE

Strand Life Sciences

Tshaka Cunningham, Ph.D.

Polaris Genomics Inc.

Dr.Dayaprasad G Kulkarni

Founder & Director- Aarogya Seva

Organizing Secretariat

Nara Govindarajan, MS

IndoUSrare

Nisha Venugopal, Ph.D.

IndoUSrare

Ramya Karur

IndoUSrare

Dr.Ridima Kamal

Aarogya Seva

Saundarya MS

IndoUSrare

Sponsors 2023

Gold Sponsors

Silver Sponsors

Logo of BFS.
Logo of larimar.
Logo of BFS.

Sponsors

Souvenir Book

The Indo US Bridging RARE Summit Souvenir will be distributed to all attendees. It showcases speaker profiles, the meeting agenda and special sessions, Sponsors, leadership messages, photographs, Sponsor and exhibitor information, and much more.


Book An Ad Now!

Color Advertising Rates (In $) Rates (In ₹)
Back Cover $1,500 ₹ 75,000
Inside Cover $500 ₹ 35,000
Full Page $350 ₹ 20,000
Half Page $250 ₹ 12,000

Specifications

The souvenir book will be designed to have a final size of 8.5”x 11” which will include a ½” border all around. Please follow the below-listed specifications while submitting your ad.

File Size

  • Full page ad: 7.5” x 10”
  • Half page ad: 3” X 5”

File Format

  • High-resolution PDF or JPEG ( minimum 300 DPI resolution)
  • All color files must be created using CMYK
  • All files should have embedded fonts.

Files that do not meet these requirements will not be accepted. Quality of printing will depend upon the sharpness of the images used.

Submissions

  • Ads may also be emailed to summit@indousrare.org

LAST DATE FOR SUBMISSIONS: 10 October 2024

Conference Venue

Indian National Science Academy ( INSA – New Delhi)

Indian National Science Academy ( INSA – New Delhi)

Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

Accommodation

The Ashok

The Ashok

50, Niti Marg, Diplomatic Enclave, Chanakyapuri, New Delhi, Delhi 110021

The organizers have blocked rooms at The Ashok at special rates for conference attendees. This is a recommended hotel - please write to the summit Secretariat at summit@indousrare.org to book your accommodation

Other Nearby Hotels

Here are our recommendations for hotels nearby the venue. Attendees are requested to contact the hotels directly to book their stay.

5 Star Hotels

The Lalit

Fire Brigade Lane, Barakhamba, New Delhi, Delhi 110001

Le Méridien

Le Méridien, Windsor Pl, Connaught Place, New Delhi, Delhi 110001

Shangri-La Eros

19, Ashoka Rd, Janpath, Connaught Place, New Delhi, Delhi 110001

3 and 4 Star Hotels

The Hans New Delhi

Hotel Royal Plaza

Hotel Gold Regency

Hotel The Corus

Hotel Ritz

Indian National Science Academy
Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

Apply for Travel Support

Travel scholarships for the Indo US Bridging RARE Summit are now open. Apply early as limited slots are available!!