About Indo US Bridging RARE Summit 2024

Connecting the Global Rare Disease Community

We are excited to invite you to the Indo US Bridging RARE Summit 2024 to be held on Nov 16-18 in New Delhi, India.

Organized in collaboration with the All India Institute of Medical Sciences, New Delhi, the #BridgingRare Summit 2024 will feature an exciting lineup of prominent speakers from India and the US, workshops, and a Gala dinner and Award Ceremony.

Why join us?

Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D

Highly informative and educational sessions

Great networking opportunities

Special focus on India and emerging markets

The event will take place in HYBRID mode with live streaming of sessions and an excellent online networking platform.

Agenda

*All times are based on Indian Standard Time (UTC+5:30)

Registration opens (1:00 pm)

Pre-conference Workshops (2:00 pm - 5:00 pm)

Co-Chairs

Harsha Rajasimha, Ph.D., Jeeva Clinical Trials

Tshaka Cunningham, PhD Polaris Genomics Inc.

Sowmya Kaur, Navitas Life Sciences (TBC)

Rakesh Lodha, Prof of Pediatrics, AIIMS, Delhi

Co-Chairs

Jean Campbell, Professional Patient Advocates in Life Sciences (PPALS)

Ratna Devi, DakshamA Health

Co-Chairs

Cristol O’Loughlin, RareGivers

Co-Chairs

Debjani Saha, Praveen Gupta Premas Life Sciences

Co-Chairs

Priyankana Mukherjee, PhD, IKP Eden

Inauguration - Lamp Lighting
Bridging RARE Celebration Fusion Music and Videos!
Keynotes
Abbey Meyers Khushi Bridging RARE Awards Ceremony
Entertainment and Gala Dinner

Close of Day 1

Registration Opens (8:00 am)

Co-Chairs

Harsha Rajasimha, MS, PhD, Indo US Organization for Rare Diseases

Madhulika Kabra, MD, All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

Speaker

David A Pearce PhD Chair, International Rare Disease Research Consortium (IRDiRC)

Co-Chairs

Vijay Chandru, PhD, FNAe, FASc, Strand Life Sciences

Ashwin Dalal, MD, DM, Centre for DNA Fingerprinting and Diagnostics (CDFD)

Networking Coffee (Posters and Exhibits) 11:30 am - 12:00 pm

Co-Chairs

Neerja Gupta, MD, DM All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

Alok Srivastava, MD (TBC) Christian Medical College, Vellore

Lunch (1:30 pm - 2:30 pm)

TBD

Networking Coffee (Posters and Exhibits) 4:00 pm - 4:30 pm

Co-Chairs

Madhulika Kabra, MD

Paul Mehta, MD CDC/ATSDR

Networking and Buffet Dinner (6:00 pm - 8:00 pm)

Close of Day 2

Session Chair

Madhulika Kabra, MD

Speaker

Dr. Peter Marks CBER, FDA

Co-Chairs

Dr. Mathew Thomas, former FDA India

Dr. Raghuvanshi, DCGI (TBC)

Networking Coffee (Posters and Exhibits) 11:00 am - 11:30 am

Co-Chairs

Mathew Pauls, Savara

TBD

Lunch 1:00 pm - 2:00 pm

Co-Chairs

Dr VK Paul, NITI Ayog

TBD

Co-Chairs

Anish Bhatnagar, MD

Dipal Doshi, MBA, Entrada Tx (TBC)

Networking Coffee (Posters and Exhibits) 3:30 pm - 4:00 pm

Co-Chairs

TBD

Closing Remarks and Action Items from Working Groups (5:30 pm - 6:00 pm)

Vote of Thanks 6:00 pm - 6:30 pm

Close of Day 3 (6:30 pm)

Keynote Speakers

Ms. Meredith Manning, President – The Americas Pharma Essentia USA Corporation.

Our Speakers

Summit Planning Committee

Amy Adams, Ph.D.

Institute for Biohealth Innovation, George Mason University

Rich Bendis

BioHealth Innovation and BioHealth Capital Region Forum

Anish Bhatnagar, MD

IndoUSrare and Soleno Therapeutics

Ashwin Dalal, MD, DM

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Neerja Gupta, MD, DM

All India Institute of Medical Sciences (AIIMS, Delhi)

Madhulika Kabra, MD

All India Institute of Medical Sciences (AIIMS, Delhi)

Reena Kartha, MS, PhD

IndoUSrare and Center for Orphan Drug Research, UMN

Juhi Naithani, MBA

IndoUSrare and bGlobal Consulting

John Newby, JD

Virginia Bio

Ratna Dua Puri, MD, DM

Sir Ganga Ram Hospital

Harsha Rajasimha, MS, PhD

IndoUSrare and Jeeva Informatics Solutions

Frank Sasinowski, JD, MPH

IndoUSrare and Hyman Phelps McNamara PC

K Thangaraj, PhD

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Advisory Planning Committee

Isaac R. Rodriguez-Chavez, PhD, MHSc, MSc

4Biosolutions Consulting

Teresa Ginger Davis

Sickle Cell Thalassemia Patient's Network (SCTPN)

Paul Mehta, MD

National ALS Registry, CDC/ATSDR

Dr. Mathew Thomas

MTT Consulting

Vijay Chandru, PhD, FASc, FNAE

Strand Life Sciences

Tshaka Cunningham, Ph.D.

Polaris Genomics Inc.

Dr.Dayaprasad G Kulkarni

Founder & Director- Aarogya Seva

Organizing Secretariat

Nara Govindarajan, MS

IndoUSrare

Nisha Venugopal, Ph.D.

IndoUSrare

Ramya Karur

IndoUSrare

Dr.Ridima Kamal

Aarogya Seva

Saundarya MS

IndoUSrare

Sponsors 2023

Gold Sponsors

Silver Sponsors

	India Sponsor	International Sponsor
Title	₹ 15 lakhs	$50,000
Platinum	₹ 12 lakhs	$30,000
Gold	₹ 10 lakhs	$20,000
Silver	₹ 8 lakhs	$10,000
Bronze	₹ 4 lakhs	$5,000
Virtual Platform Sponsor	₹ 5 lakhs	$7,500
Media Sponsor	₹ 5 lakhs	$7,500
Conference WIFI Sponsor	₹ 5 lakhs	$7,500
Summit Souvenir Sponsor	₹ 5 lakhs	$7,500
Lunch Sponsor (Day 1 or 2)	₹ 4 lakhs	$6,000
Lanyard Sponsor	₹ 3 lakhs	$5,000
Swag Bag Sponsor	₹ 1.5 lakhs	$2,500
International Travel Sponsor	₹1.5 lakhs each	$ 2,500 each
Domestic Travel Sponsor	₹ 40, 000 each	$ 800 each
Awards Gala Title Sponsor	₹ 10 lakh	$18,500
Welcome Reception Sponsor	₹ 7 lakh	$17,500
Full Table at Gala	₹ 1 lakh	$1,500
Half Table at Gala	₹ 60,000	$650

	India Sponsor	International Sponsor
Standard (In person & Virtual)	₹ 1.5 lakh	$2,500
Virtual only	₹ 1 lakh	$1,800

Souvenir Book

The Indo US Bridging RARE Summit Souvenir will be distributed to all attendees. It showcases speaker profiles, the meeting agenda and special sessions, Sponsors, leadership messages, photographs, Sponsor and exhibitor information, and much more.

Book An Ad Now!

Color Advertising	Rates (In $)	Rates (In ₹)
Back Cover	$1,500	₹ 75,000
Inside Cover	$500	₹ 35,000
Full Page	$350	₹ 20,000
Half Page	$250	₹ 12,000

Specifications

The souvenir book will be designed to have a final size of 8.5”x 11” which will include a ½” border all around. Please follow the below-listed specifications while submitting your ad.

File Size

Full page ad: 7.5” x 10”
Half page ad: 3” X 5”

File Format

High-resolution PDF or JPEG ( minimum 300 DPI resolution)
All color files must be created using CMYK
All files should have embedded fonts.

Files that do not meet these requirements will not be accepted. Quality of printing will depend upon the sharpness of the images used.

Submissions

Ads may also be emailed to summit@indousrare.org

LAST DATE FOR SUBMISSIONS: 10 October 2024

Conference Venue

Indian National Science Academy ( INSA – New Delhi)

Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

Accommodation

The Ashok

50, Niti Marg, Diplomatic Enclave, Chanakyapuri, New Delhi, Delhi 110021

The organizers have blocked rooms at The Ashok at special rates for conference attendees. This is a recommended hotel - please write to the summit Secretariat at summit@indousrare.org to book your accommodation

Other Nearby Hotels

Here are our recommendations for hotels nearby the venue. Attendees are requested to contact the hotels directly to book their stay.

5 Star Hotels

The Lalit

Fire Brigade Lane, Barakhamba, New Delhi, Delhi 110001

Le Méridien

Le Méridien, Windsor Pl, Connaught Place, New Delhi, Delhi 110001

Shangri-La Eros

19, Ashoka Rd, Janpath, Connaught Place, New Delhi, Delhi 110001

3 and 4 Star Hotels

The Hans New Delhi

Hotel Royal Plaza

Hotel Gold Regency

Hotel The Corus

Hotel Ritz

Apply for Travel Support

Travel scholarships for the Indo US Bridging RARE Summit are now open. Apply early as limited slots are available!!

Apply Now!

About Indo US Bridging RARE Summit 2024

Connecting the Global Rare Disease Community

Why join us?

Indo US Bridging RARE Summit 2024 is a Hybrid Event

Gala and Awards Ceremony

Agenda

*All times are based on Indian Standard Time (UTC+5:30)

Registration opens (1:00 pm)

Pre-conference Workshops (2:00 pm - 5:00 pm)

Pre-conference Workshop 1: Clinical Trial Readiness for Clinicians

Pre-conference Workshop 1: Clinical Trial Readiness for Clinicians

Pre-conference Workshop 2: Professional Patient Advocacy & Legislative Advocacy

Pre-conference Workshop 2: Professional Patient Advocacy & Legislative Advocacy

Pre-conference Workshop 3: Emotional Wellbeing for Caregivers, Patients, & Professionals

Pre-conference Workshop 3: Emotional Wellbeing for Caregivers, Patients, & Professionals

Pre-conference Workshop 4 (AIIMS-Delhi): NGS Workshop

Pre-conference Workshop 4 (AIIMS-Delhi): NGS Workshop

Start-Up Pitch Contest 3:00 pm - 5:00 pm

Start-Up Pitch Contest

Bridging RARE Gala and Reception 6:00 pm - 9:00 pm

Bridging RARE Gala and Reception

Close of Day 1

Registration Opens (8:00 am)

Welcome to the Summit and Opening Remarks 9:00 am - 9:30 am

Welcome to the Summit and Opening Remarks

Opening Keynote 9:30 am - 10:00 am

Opening Keynote

Session 1: Screening, Diagnosis, and Treatment Options 10:00 am to 11:30 am

Session 1: Screening, Diagnosis, and Treatment Options

Networking Coffee (Posters and Exhibits) 11:30 am - 12:00 pm

Session 2: Care Pathways and Novel Therapies 12:00 pm - 1:30 pm

Session 2: Care Pathways and Novel Therapies

Lunch (1:30 pm - 2:30 pm)

Session 3: Access to Therapies and Globalization for Orphan Drugs 2:30 pm - 4:00 pm

Session 3: Access to Therapies and Globalization for Orphan Drugs

Networking Coffee (Posters and Exhibits) 4:00 pm - 4:30 pm

Session 4: Digitization & Epidemiology of Rare Diseases with Patient Registries in Emerging Markets 4:30 pm - 6:00 pm

Session 4: Digitization & Epidemiology of Rare Diseases with Patient Registries in Emerging Markets

Networking and Buffet Dinner (6:00 pm - 8:00 pm)

Pre-arranged Bus tours of local attractions and counties to showcase resources and capabilities in the BHCR region.

Close of Day 2

Recap of Day 1 & 2 9:00 am - 9:10 am

Recap of Day 1 & 2

Keynote Address 9:10 am - 9:30 am

Keynote Address

Session 5: Accelerated Regulatory Pathways and Public Health Policies for Orphan Drugs in the US and India 9:30 am - 11:00 am

Session 5: Accelerated Regulatory Pathways and Public Health Policies for Orphan Drugs in the US and India

Networking Coffee (Posters and Exhibits) 11:00 am - 11:30 am

Session 6: Challenges and Strategies for Orphan Drug Clinical Trials and Operations in the US and India 11:30 am - 1:00 pm

Session 6: Challenges and Strategies for Orphan Drug Clinical Trials and Operations in the US and India

Lunch 1:00 pm - 2:00 pm

Plenary Keynote 2:00 pm - 2:30 pm

Plenary Keynote

Session 7: Breaking barriers to enable commercial launch of orphan drugs in India and similar countries 2:30 pm - 3:30 pm

Session 7: Breaking barriers to enable commercial launch of orphan drugs in India and similar countries

Networking Coffee (Posters and Exhibits) 3:30 pm - 4:00 pm

Session 8: Developing & Updating the Blueprint for US-India Cooperation for Rare Diseases & Orphan Drugs BREAK OUT WORKING GROUPS with Whiteboarding 4:00 pm - 5:30 pm

Session 8: Developing & Updating the Blueprint for US-India Cooperation for Rare Diseases & Orphan Drugs

Closing Remarks and Action Items from Working Groups (5:30 pm - 6:00 pm)

Vote of Thanks 6:00 pm - 6:30 pm

Close of Day 3 (6:30 pm)

Keynote Speakers

David A Pearce PhD

Peter Marks, MD, PhD

Dr. L Swasticharan

Vikram Karnani, MS, MBA

Special Address

Abbey S Meyers, PhD

Our Speakers

Jean Campbell

Ratna Devi, MBBS, MBA

Anil Raina

Cristol O Loughlin

Dipal Doshi

Rakesh Lodha

Atchayaram Nalini, MBBS, DM, PhD

Prof. Sheffali Gulati MD, FRCPCH (UK), FAMS, FIAP, FIMSA

Jaime Reynolds, MPH

Present Your Research at the Indo US Bridging RARE Summit 2024

Join an exciting line-up of speakers & presenters!