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About Indo US Bridging RARE Summit 2025

Strengthening the Framework for Inclusive and Accessible Patient-Focussed Clinical Research in Rare Diseases

We are excited to invite you to the Indo US Bridging RARE Summit 2025 to be held on Nov 2 - 4 in GMU, Manassas, VA, USA.

Organized in collaboration with George Mason University the #BridgingRare Summit 2025 will feature an exciting lineup of prominent speakers from India and the US, workshops, and a Gala dinner and Award Ceremony.

Why join us?

Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D

Highly informative and educational sessions

Great networking opportunities

Special focus on India and emerging markets

The event will take place in HYBRID mode with live streaming of sessions and an excellent online networking platform.

about-us

Indo US Bridging RARE Summit 2025 is a Hybrid Event

Live and in-person at George Mason University, Manassas, VA, USA

Registration Rates

In-person
649$
Virtual
199$
  • Corporate or Industry Representatives
  • Insurance or Financial Service Providers
In-person
249$
Virtual
149$
  • Startup Founder or Entrepreneur
In-person
199$
Virtual
75$
  • Patient Advocates/ Org Reps
  • Scientists/ Researchers (Non-industry)
  • Healthcare Professionals (Clinic, Hospital, or Similar)
  • Other Non-Profit or Government Representatives
In-person
99$
Virtual
25$
  • Patients/ Caregivers/Family Members
  • Students
Seat at Gala
249 $
  • Special discounted price as add on to Summit Registration*

Gala and Awards Ceremony

Gala and Awards Ceremony
Gala and Awards Ceremony

Gala Venue

AIIMS Swimming Pool, New Delhi, India

Pitch4RARE Contest

STARTUPS, FOUNDERS, INNOVATORS.

Join us at the #PITCH4RARE contest at the Indo US Bridging RARE Summit 2025!

Are you addressing unmet needs of patients with rare diseases by developing innovative products, diagnostics, therapies, or digital health solutions? Here is your opportunity to showcase to key stakeholders.

Limited startups will be selected to pitch.

Register NOW!

Present Your Research at the Indo US Bridging RARE Summit 2025

Join an exciting line-up of speakers & presenters!

We invite you to share your knowledge and experience with the global rare disease community.

This is an excellent opportunity for you to showcase your work and expand your collaborative network by interacting with rare disease stakeholders including our eminent speakers and panelists from US and India.

Speaker and Poster Abstract Submissions

We welcome abstracts across a broad range of themes including:

  • Cross Border Patient Engagement
  • Indo-US Comparisons in Care Pathways - Screening, Diagnosis, & Treatment Options
  • Data Privacy and Governance Across Borders
  • Clinical Trials for Orphan Drugs
  • Advances in Regulatory Pathways for Orphan Products
  • DEIA and Globalization for Orphan Drug Research
  • Others

Summit Team


Summit Planning Committee


Ms. Amy Adams, Ph.D.,Institute for Biohealth Innovation, George Mason University.

Amy Adams, Ph.D.

Institute for Biohealth Innovation, George Mason University
Mr. Rich Bendis, BioHealth Innovation and BioHealth Capital Region Forum.

Rich Bendis

BioHealth Innovation and BioHealth Capital Region Forum
Mr. Anish Bhatnagar, MD, IndoUSrare and Soleno Therapeutics.

Anish Bhatnagar, MD

IndoUSrare and Soleno Therapeutics

Neerja Gupta, MD, DM

All India Institute of Medical Sciences (AIIMS, Delhi)
Ms. Madhulika Kabra, MD, All India Institute of Medical Sciences (AIIMS, Delhi).

Madhulika Kabra, MD

All India Institute of Medical Sciences (AIIMS, Delhi)
Ms. Reena Kartha, MS, Ph.D., IndoUSrare and Center for Orphan Drug Research, UMN.

Reena Kartha, MS, PhD

IndoUSrare and Center for Orphan Drug Research, UMN
Ms. Juhi Naithani, MBA, IndoUSrare and bGlobal Consulting.

Juhi Naithani, MBA

IndoUSrare and bGlobal Consulting
Mr. John Newby, JD, Virginia Bio.

John Newby, JD

Virginia Bio

Ratna Dua Puri, MD, DM

Sir Ganga Ram Hospital
Mr. Frank Sasinowski, MPH, JD, IndoUSrare and Hyman Phelps McNamara PC.

Frank Sasinowski, JD, MPH

IndoUSrare and Hyman Phelps McNamara PC
Mr. K Thangaraj, Ph.D.,Centre for DNA Fingerprinting and Diagnostics (CDFD)

K Thangaraj, PhD

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Dr. Mathew  Thomas

Former USFDA India Office Country Director
Mr. Harsha Rajasimha, MS, Ph.D., IndoUSrare and Jeeva Informatics Solutions.

Harsha Rajasimha, MS, PhD

IndoUSrare and Jeeva Clinical Trials

Summit Advisors


Isaac R. Rodriguez-Chavez, PhD, MHSc, MSc

4Biosolutions Consulting

Teresa Ginger Davis, PhD

Sickle Cell Thalassemia Patient's Network (SCTPN)

Tshaka Cunningham, PhD

Athari Biosciences

Jenifer Waldrop, MSHRD

Rare Disease Diversity Coalition

Organizing Secretariat

Nara Govindarajan, MS

IndoUSrare

Nisha Venugopal, Ph.D.

IndoUSrare

Ramya Karur

IndoUSrare

Michelle Romero, MS

Inspire Clinical Research

Sponsors 2025

Partners

Media Partner

Sponsors 2024

Gold Sponsors

Silver Sponsors

Bronze Sponsors

PITCH4RARE Sponsors

Other Sponsors and Exhibitors

Souvenir Book

The Indo US Bridging RARE Summit Souvenir will be distributed to all attendees. It showcases speaker profiles, the meeting agenda and special sessions, Sponsors, leadership messages, photographs, Sponsor and exhibitor information, and much more.


Book An Ad Now!

Color Advertising Rates (In $)
Back Cover $ 4,000
Inside Cover $ 2,500
Full Page $ 1,500
Half Page $ 750

Specifications

The souvenir book will be designed to have a final size of 8.5”x 11” which will include a ½” border all around. Please follow the below-listed specifications while submitting your ad.

File Size

  • Full page ad: 7.5” x 10”
  • Half page ad: 3” X 5”

File Format

  • High-resolution PDF or JPEG ( minimum 300 DPI resolution)
  • All color files must be created using CMYK
  • All files should have embedded fonts.

Files that do not meet these requirements will not be accepted. Quality of printing will depend upon the sharpness of the images used.

Submissions

  • Ads may also be emailed to summit@indousrare.org

LAST DATE FOR SUBMISSIONS: 10 October 2025

Conference Venue

Hylton Performing Arts Center

George Mason University, Manassas, VA, USA

10960 George Mason Cir, Manassas, VA 20110, United States

Accommodation

The Ashok

The Ashok

50, Niti Marg, Diplomatic Enclave, Chanakyapuri, New Delhi, Delhi 110021

The organizers have blocked rooms at The Ashok at special rates for conference attendees. This is a recommended hotel - please write to the summit Secretariat at summit@indousrare.org to book your accommodation

Nearby Hotels

Here are our recommendations for hotels nearby the venue.

Tru by Hilton

10550 Gateway Blvd Manassas, Virginia 20110

SpringHill Suites by Marriott®

7921 Gateway Promenade Place Gainesville, Virginia, USA, 20155

Courtyard Manassas Battlefield Park

0701 Battleview Pkwy, Manassas, VA 20109, United States

3 and 4 Star Hotels

The Hans New Delhi

Hotel Royal Plaza

Hotel Gold Regency

Hotel The Corus

Hotel Ritz

Indian National Science Academy
Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

Apply for Travel Support

Travel scholarships for the Indo US Bridging RARE Summit are now open. Apply early as limited slots are available!!