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About Indo US Bridging RARE Summit 2024

Connecting the Global Rare Disease Community

We are excited to invite you to the Indo US Bridging RARE Summit 2024 to be held on Nov 16-18 in New Delhi, India.

Organized in collaboration with the All India Institute of Medical Sciences, New Delhi, the #BridgingRare Summit 2024 will feature an exciting lineup of prominent speakers from India and the US, workshops, and a Gala dinner and Award Ceremony.

Why join us?

Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D

Highly informative and educational sessions

Great networking opportunities

Special focus on India and emerging markets

The event will take place in HYBRID mode with live streaming of sessions and an excellent online networking platform.

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about-us

Indo US Bridging RARE Summit 2024 is a Hybrid Event

Live and in-person at Indian National Science Academy (INSA), New Delhi

Registrations Details

 

Registration fee chart for the Indo-US Bridging RARE Summit 2023, Gala & Awards ceremony. Registration fee chart for the Indo-US Bridging RARE Summit 2023, Gala & Awards ceremony.
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  • Please note that only the Indo US Bridging RARE Summit sessions can be attended virtually. The Gala and Awards Ceremony is an in person only event, and will require your presence at the venue
  • *Valid only if the ticket is purchased along with Summit registration. This rate will not be applicable if tickets are purchased separately at any later point in time.
  • Please note Discount is NOT applicable on Gala Ticket.

Gala and Awards Ceremony

Gala and Awards Ceremony
Gala and Awards Ceremony

Gala Venue

AIIMS Swimming Pool, New Delhi, India

Pitch4RARE Contest

Gala and Awards Ceremony

STARTUPS, FOUNDERS, INNOVATORS.

Join us at the #PITCH4RARE contest at the Indo US Bridging RARE Summit 2024!

Are you addressing unmet needs of patients with rare diseases by developing innovative products, diagnostics, therapies, or digital health solutions? Here is your opportunity to showcase to key stakeholders.

Limited startups will be selected to pitch.

Judging panel of senior international leaders from India, France, and the US.

James A. Levine, MD, PhD, Fondation Ipsen

Priyankana Mukherjee, PhD, IKP Eden

Amrit Ray, MD, MBA, Biopharma Executive, Rare Parent

Pankaj Bhargava, MD, ashibio

Dr. Dayaprasad Kulkarani, AarogyaSeva

Anish Bhatnagar, MD, IndoUSrare & Soleno Therapeutics,

Tshaka Cunningham, PhD, Athari Biosciences,

Anand Kannan, IFIA Bharat

Krishna Subramanian, PhD, Seelos Therapeutics

Register NOW!

Agenda

Download Agenda

*All times are based on Indian Standard Time (UTC+5:30)

Registration opens (1:00 pm)

What does it take to qualify a physician’s clinic or hospital as a clinical trial site?

What qualifications or certifications are needed for a doctor to assume the role of Principal or Sub- or Co-investigator?

Survival guide for sites to survive a GCP audit by regulators such as the FDA or CDSCO

Driving patient-centricity, efficiency, and productivity, in clinical trials

Faculty

Harsha Rajasimha, Ph.D., IndoUSrare and Jeeva Clinical Trials

Dr. Rakesh Lodha, AIIMS, Delhi

Michelle Romero, Consultant to CROs and IRB member

Dr. Mathew T. Thomas, Former USFDA India Office Country Director

Prof. Bangarurajan, JSS College of Pharmacy

Who is a patient advocate?

Goal setting for patient advocates

What has patient advocacy achieved?

Role of patient advocacy in drug development

How to be an effective communicator as a patient or caregiver?

Involving Industry and Academics in Drug Development

Jean Campbell, Professional Patient Advocates in Life Sciences (PPALS)

Dr. Ratna Devi, DakshamA Health

Mohua Chakraborty Choudhury, PhD, MPH, IISc

David Rintell, Ed.D, BridgeBio

Nita Patel, BSN, Ex-Amicus Therapeutics

Nahid Zaman, Astrazeneca India

Dr. B.S. Charan, DGHS

Occupational and physical therapies relevant to rare diseases

Self-care, managing emotions, and guilt

Cristol O’Loughlin, RaregiversTM

Vaishali Pai, Tamahar Trust

Team Premas Life Sciences

Debjani Saha, Premas Life Sciences

Dr. Rahul Ramekar, Premas Life Sciences

Lakshman Teja, Premas Life Sciences

Dr. Vikas Sharma, Premas Life Sciences

Priyanka Singh, Premas Life Sciences

Ratna Dua Puri,MD, DM, SIAMG

Neerja Gupta, MD, DM, AIIMS, Delhi

Co-Chairs

Priyankana Mukherjee, PhD, IKP Eden

James A. Levine, MD PhD, Foundation Ipsen

  1. Art Exhibit - in partnership with Beyond the Diagnosis
  2. Prayer and Invocations
  3. Inauguration and Lamp Lighting
  4. Abbey Meyers Khushi Bridging RARE Awards Ceremony
  5. Keynotes
  6. Patient Community Voices
  7. Entertainment
  8. Dinner and Networking

Chief Guest:

Dr. Chandra Sekhar Pemmasani - Minister of State for Rural Development and Communication

Keynote - Abbey Meyers Khushi Bridging RARE Award Honorees:

Dr. Rahul Purwar, Dr. Hasmukh Jain

Frank Sasinowski, JD, MPH

Felicitation
Dr. Abbey Meyers, Founder, NORD

Patient community voices:

  1. Gautam Dongre, NASCO

  2. Shikha Metharamani PWSA - India

  3. Sunil Ladwa, FOP India

Performances:

  1. Tabla recital - Saksham Mishra

  2. BharataNatyam performance - Mansa Gautam and Raunika Negi

  3. Vocal performances - Chetan Chawla and Ms Ridisha

Close of Day 1

Registration Opens (8:00 am)

Summit Chairperson

Harsha Rajasimha, MS, PhD, Indo US Organization for Rare Diseases & Jeeva Clinical Trials

Summit Co-Chair

Madhulika Kabra, MD, All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

Success stories from the IRDiRC working groups and what we can learn from other countries

Speaker

David A Pearce, PhD, International Rare Disease Research Consortium (IRDiRC)

  • Why are patient registries a critical prerequisite for advancing orphan therapy development?
  • Critical success factors while designing and implementing patient registries
  • It’s a patient-led revolution
  • How policymakers can utilize epidemiology and registries
  • Status and plans for national registries in India and the USA

Co-Chairs

Madhulika Kabra, MD AIIMS Delhi

Paul Mehta, MD, CDC/ATSDR

Speakers/Panelists:

Dr. Manoj Srinivasa, CHG

Dr. Ravi Hiremagalore, CHG

Dr. Amlin Shukla, ICMR TBC

Nisha Venugopal, PhD, IndoUSrare

Kim Bloemendal, Sanofi

Networking Coffee (Posters and Exhibits) 11:10 am - 11:40 am

  • What have we learned from newborn screening programs in India and the US?
  • What does it take to make newborn screening mandatory in India?
  • Quality – why it matters in clinical genomic diagnosis
  • Cross-border data sharing and broader implications

Chair

Vijay Chandru, PhD, FNAe, FASc Strand Life Sciences

Speakers/Panelists

K Thangaraj, PhD, CSIR-CCMB

Seema Kapoor, MD, Maulana Azad Medical College

Inderneel Sahai, MBBS, Massachusetts General Hospital

Reety Arora, PhD, CrisprBits

Shaiket Deb, Strand Life Sciences

Suruchi Aggarwal, PhD, Medgenome

  • Reducing the dosage of orphan drugs to minimize long-term adverse effects
  • Affordable diagnostics
  • How biopharma industry can influence public policy

Ganesh Sangle, PhD, Shivanka Research

Vamshi Krishna Thamtham, MD, LalPath Labs

AstraZeneca India Representative

Lunch (1:20 pm - 2:10 pm)

  • Emerging novel therapies for rare diseases
  • Development of Indigenous counterparts
  • Drug repurposing for accessible therapies
  • Prioritizing Innovation, Accessibility, and Affordability
  • Success stories and most promising opportunities

Co-Chairs

Neerja Gupta, MD, DM AIIMS-Delhi

Reena Kartha MS PhD, IndoUSrare and University of Minnesota

Speakers/Panelists

Dr. Ashish Gupta, University of Minnesota

Dr. Jayandharan Rao, IIT Kanpur

Madhusudhan V, LifeArc

Networking Coffee 3:25 pm - 3:40 pm

  • Living with a rare disease
  • Caregiving for a child with a rare disease
  • Common challenges across multiple rare diseases
  • Disease-specific challenges
  • What's working and what’s not working for patients?

Moderator:

COE representative

Speakers/Panelists

Christina Raj, CIRMF

Saurabh Singh, RDIF

Nikhil Jayswal, IBD India

Srijan Mittal, Myositis India

Nadir Aman, CDKL5 South Asia

  • Commercial launch of orphan drugs in India and LMICs
  • Manufacturing
  • Inclusion of Trial Sites in India
  • Role of patient advocacy in orphan drug development

Moderator:

Anil Raina, MPIB, Biopharma Executive

Speakers/Panelists

Parva Purohit, PhD, Shivanka Research

Pankaj Bhargava, MD ashibio

David Rintell, Ed.D, BridgeBio

Networking Posters and Exhibits - Buffet Dinner (6:00 pm - 8:00 pm)

Selected startups pitching their solutions to pressing unmet needs of patients with rare diseases

Judges Panel:

James A. Levine, MD, PhD, Fondation Ipsen

Priyankana Mukherjee, PhD, IKP Eden

Amrit Ray, MD, MBA, Biopharma Executive, Rare Parent

Pankaj Bhargava, MD, ashibio

Dr. Dayaprasad Kulkarani, AarogyaSeva

Anish Bhatnagar, MD, IndoUSrare & Soleno Therapeutics

Dr. Krishna Subramanian, Seelos Therapeutics

Anand Kannan, IFIA Bharat

Close of Day 2

Session Chair

Ratna Puri, MD, DM SGRH

Recent FDA regulatory progress and perspectives on cell and gene therapies

Speaker

Peter Marks, MD, PhD CBER, USFDA

Introduction by Dr. Mathew T. Thomas, Former USFDA India Office Country Director

Massive Global Inequities in Access to Orphan Therapies: Perspectives from a Biopharma Executive and Rare Parent

Speaker

Amrit Ray, M.D., M.B.A., Biopharma Executive, Rare Parent

  • NPRD and NDCTR in India
  • Biosecure ACT and IRA in the US.
  • FDA Project Asha for Cancer Clinical Trials
  • FDA START program
  • COGENT
  • Rare Disease Innovation Hub

Co-Chairs

Dr. Mathew Thomas, Former USFDA India

Dr. Geeta Jotwani, ICMR

Speakers/ Panelists

Prof. Bangarurajan, JSS College of Pharmacy

Dr. B S Charan, DGHS

Dr. A Visala, CDSCO

Dr. Krishna Subramanian, Seelos Therapeutics

Networking Coffee (Posters and Exhibits) 11:00 am - 11:20 am

  • Diversity, Equity, Inclusion, Access in the Global Context
  • Current massive inequity in access
  • Focus on Sickle Cell Disease epidemiology for DEIA
  • Reimbursements and Pricing Orphan Drugs in India
  • Legislations and Regulations Impacting DEIA

Co-Chairs

David A Pearce, PhD, IRDiRC

Anil Raina, MPIB, Biopharma Executive

Speakers/Panelists

Ginger Davis, PhD, SCTPN

Harpreet Ram, MBA, GARDAccess

Jenifer Waldrop, MSHRD, Rare Disease Diversity Coalition

Dr. Manisha Badak, National Insurance Corporation

Co-Chairs

Dr. Daya Prasad Kulkarani,AarogyaSeva

Lunch 1:00 pm - 2:00 pm

  • Rare Care Pathways to Success for ALS
  • Contrast in Care Pathways and Access in US/India
  • Global Access to Duvyzat for Muscular Dystrophy
  • Commonalities and differences among various muscular dystrophies

Co-Chairs

Dr. Sheffali Gulati, AIIMS, New Delhi

Speakers/Panelists

Jaime Raymond, MPH, CDC/ATSDR

Rama Murali, BharathMD Foundation

Alok Bhattacharya, PhD, WWGM

Archana Panda, CureSMA Foundation

  • NPRD and the role of CoEs in India
  • Current status of implementation of NPRD
  • Recent high court order and its implications for patients
  • Barriers for patients to benefit from NPRD
  • How CoEs are driving “patient centricity”
  • What advice would CoEs have for patients and advocates?

Co-Chairs

Shubha Phadke, MD, DM, SGPGI, Lucknow

Ashish Gupta, MD, MPH, UMN

Speakers/Panelists

Bhavna Dhingra, MD, DNB, AIIMS Bhopal

Sankar V. Hariharan, MD, DM SAT Hospital, Trivadrum

Kuldeep Singh, MD, DM, FAMS, AIIMS Jodhpur

Sanjeeva GN, DCH, DNB, Indira Gandhi Institute of Child Health, Bengaluru

Prajnya Ranganath, MD, DM, NIMS, Hyderabad

Networking Coffee (Posters and Exhibits) 4:00 pm - 4:20 pm

Developing a Blueprint for US-India Strategic Cooperation for Rare Diseases Research and Orphan Drugs Development

  • Leaders:

    Harsha K Rajasimha, MS, PhD

    Amrit Ray, MD

    Pankaj Bhargava, MD

    WORKING GROUP 1: NBS, Screening, Diagnosis, Patient Registries, Referral Networks

    WORKING GROUP 2: Strategy to Achieve Equitable Representation of Indian Diaspora in CRAACO, Clinical Trials

    WORKING GROUP 3: Legislative, Regulatory, Financial Advocacy, the ASK: Indian and US Legislators, CDSCO and FDA. E.g., ASHA program for Cancer Clinical Trials.

    WORKING GROUP 4: BioSecure ACT and Inflation Reduction Act of USA and Food/Drugs/Cosmetics Act and NPRD of India - How India can play a greater role in affordable Innovation, R&D, and Manufacturing?

    All participants pick a working group to lead or contribute or participate in

    WG Leaders:

    Dr. Seema Kapoor, MAMC

    Dr. Ratna Dua Puri, SGRH

    Dr. Ratna Devi, DakshamA Health

    Rama Murali, BharatMD Foundation

    Anil Raina, MPIB

    Dr. Mathew T. Thomas, Former USFDA India Office Country Director.

    Parva Purohit, PhD, Shivanka Research

    Ganesh Sangle, PhD, Shivanka Research

    Madhulika Kabra, MD All India Institute of Medical Sciences, New Delhi (AIIMS-Delhi)

    Harsha Rajasimha, MS, PhD Indo US Organization for Rare Diseases & Jeeva Clinical Trials

    Networking and Dinner on Your Own

    Close of Day 3 (6:00 pm)

    Keynote Speakers


    Amrit Ray, MD, MBA

    Biopharma Executive, Rare Parent
    Dr. David A Pearce PhD

    David A Pearce PhD

    Chair International Rare Disease Research Consortium (IRDiRC)
    Ms. Meredith Manning, President – The Americas Pharma Essentia USA Corporation.

    Peter Marks, MD, PhD

    Director Center for Biologics Evaluation and Research (CBER) FDA

    Dr. L Swasticharan

    Additional DDG and Director (EMR) Directorate General of Health Services Ministry of Health and Family Welfare, Govt of India
    Ms. Meredith Manning, President – The Americas Pharma Essentia USA Corporation.

    Vikram Karnani, MS, MBA

    Executive Vice President and President, Global Commercial Operations and Medical Affairs Horizon Therapeutics

    Special Address


    AbbeySMeyers

    Abbey S Meyers, PhD

    Founder and past President National Organization for Rare Disorders (NORD)

    Our Speakers


    Jean Campbell

    Co -founder Professional Patient Advocates in Life sciences

    Ratna Devi, MBBS, MBA

    CEO DakshamA Health

    Cristol O Loughlin

    Founder and CEO, RaregiversTM

    Dipal Joshi

    CEO, Entrada Therapeutics

    Rakesh Lodha, MD

    Professor, Department of Pediatrics, All India Institute of Medical Sciences

    Sheffali Gulati FRCPCH (UK), FAMS, FIAP, FIMSA, FNASc, FIANS

    Professor, Program Director, DM Pediatric Neurology Programme AIIMS Delhi

    Jaime Reynolds, MPH

    Epidemologist Centers for Disease Control and Prevention/National ALS Registry

    Gautam Dongre

    Secretary, National Alliance of SickleCell Organizations (NASCO)
    Sunil Ladwa

    Sunil Ladwa

    Founder, FOP Trust

    Jenifer Waldrop, MSHRD

    Executive Director, Rare Disease Diversity Coalition (RDDC)

    Dr. K. Bangarurajan

    Professor, JSS College of Pharmacy

    Amlin Shukla

    Scientist D, Indian Council of Medical Research (ICMR)

    Dr. Ashish Gupta

    Associate Professor, Division of Pediatric Blood and Marrow Transplantation & Cellular Therapy

    Pankaj Bhargava

    Founder, Ashibio

    Mohua Chakraborty Choudhury, PhD, MPH

    Policy Fellow, Indian Institute of Science

    Dr. B.S. Charan

    Assistant Director General, Directorate General of Health Services, Ministry of Health & Family Welfare Government of India.

    Dr Ganesh Sangle

    Sr Director & Head - NCE Discovery/Clinical Strategy, Shivanka Research LLC

    Dr. Vamshi Krishna Thamtam

    Head of Genomics and Clinical Cytogenomics, National Reference Laboratory, Dr. Lal PathLabs

    Inderneel Sahai, MBBS

    Massachusetts General Hospital

    Seema Kapoor, MD

    Professor, Maulana Azad Medical College, University of Delhi

    Parva Purohit, PhD

    Sr. VP and Head R & D, Shivanka Research

    Dr. Krishna Subramanian

    Vice President and Head of Non-clinical and Translational Science, Seelos Therapeutics

    Vaishali Pai

    Founder-Director, Tamahar Trust, Centre for Children with Special Needs

    Anil Raina, MPIB

    BioPharma Executive and Rare Patient

    Priyankana Mukherjee ,PhD

    Chief Manager & Head BioNEST, IKP Knowledge Park Bangalore

    Rama Lakshmi

    Founder, BharatMD Foundation

    Smt. Dr. Annam Visala

    Joint Drugs Controller (India), Central Drugs Standard Control Organization, MoHFW, GoI

    Madhusudhan V, PhD

    Head of Charity & Patient Engagement, LifeArc

    Dr. Ashish Gupta

    Associate Professor, Division of Pediatric Blood and Marrow Transplantation & Cellular Therapy, University of Minnesota

    Reety Arora, PhD

    Principal Scientist, CrisprBits Pvt Ltd

    Dr. Manisha Badak

    Manager, National Insurance Co. Ltd.

    Geeta Jotwani, PhD

    Senior Deputy Director General, ICMR

    Sanjeeva GN, DCH, DNB

    Professor of Pediatrics, Department of Clinical Genetics; Nodal Officer, Center of Excellence for Rare diseases (COERD), IGICH-CHG

    Prajnya Ranganath, MD, DM

    Additional Professor, Department of Medical Genetics, Nizam's Institute of Medical Sciences (NIMS)

    Michelle Romero, MS

    Inspire Clinical Research

    Nita Patel, BSN

    Ex-Amicus Therapeutics

    Archana Panda

    Founder and Director, Patient Advocacy, CureSMA Foundation

    Bhavna Dhingra, MD, DNB

    Professor, Department of Pediatrics, All India institute of Medical Sciences

    Sankar V. Hariharan, MD, DM

    SAT Hospital, Trivadrum

    Kuldeep Singh, MD, DM, FAMS

    Head, Department of Pediatrics, All India Institute of Medical Sciences

    Shubha Phadke, MD, DM

    Professor, Medical Genetics, Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow

    Christina Raj

    Founder, Center for Ichthyosis Related Members Foundation India (CIRMF)

    Saurabh Singh

    Co-Founder and Chairman, Rare Diseases India Foundation

    Nikhil Jayswal

    IBD Patient Support Foundation India

    Srijan Mittal

    Myositis India

    Nadir Aman

    CDKL5 South Asia

    Alok Bhattacharya, PhD

    Managing Trustee, World Without GNE Myopathy (WWGM)

    Suruchi Aggarwal, PhD

    Head of Scientific Affairs & Tech Support, Medgenome

    Bharti Sahai

    Director, Rare Diseases, MoHFW, GoI

    James Levine MD PhD

    President, Fondation Ipsen

    Prof. Hasmukh Jain

    Professor, Adult Hematolymphoid Unit and Cell Therapy, Medical Oncology, Tata Memorial Hospital

    Prof. Rahul Purwar

    Professor, Department of Biosciences and Bioengineering, Indian Institute of Technology

    Manoj Srinivasa, MD

    Associate Professor, Sri Madhusudhan Sai Institute of Medical Science and Research Institute and Centre for Human Genetics

    Ravi Hiremagalore, MD

    Assistant Professor, University of Alabama

    Shaiket Deb, MTech

    Director, Rare Diseases and Reproductive Health, Strand Life Sciences

    Kim Bloemendal, M.Sc

    Sanofi

    Shikha Metharamani

    IPWSA - India

    Vinay Sharma

    Business unit Head Rare disease, AstraZeneca

    Present Your Research at the Indo US Bridging RARE Summit 2024

    Join an exciting line-up of speakers & presenters!

    We invite you to share your knowledge and experience with the global rare disease community.

    This is an excellent opportunity for you to showcase your work and expand your collaborative network by interacting with rare disease stakeholders including our eminent speakers and panelists from US and India.

    Speaker and Poster Abstract Submissions

    We welcome abstracts across a broad range of themes including:

    • Cross Border Patient Engagement
    • Indo-US Comparisons in Care Pathways - Screening, Diagnosis, & Treatment Options
    • Data Privacy and Governance Across Borders
    • Clinical Trials for Orphan Drugs
    • Advances in Regulatory Pathways for Orphan Products
    • DEIA and Globalization for Orphan Drug Research
    • Others

    Submit Poster Abstract Submit Speaker Abstract

    Summit Chairpersons


    Mr. Harsha Rajasimha, MS, Ph.D., IndoUSrare and Jeeva Informatics Solutions.

    Harsha Rajasimha, MS, PhD

    IndoUSrare and Jeeva Clinical Trials
    Ms. Madhulika Kabra, MD, All India Institute of Medical Sciences (AIIMS, Delhi).

    Madhulika Kabra, MD

    All India Institute of Medical Sciences (AIIMS, Delhi)

    Summit Planning Committee Members


    Mr. Anish Bhatnagar, MD, IndoUSrare and Soleno Therapeutics.

    Anish Bhatnagar, MD

    IndoUSrare and Soleno Therapeutics

    Ashwin Dalal, MD, DM

    Centre for DNA Fingerprinting and Diagnostics (CDFD)

    Neerja Gupta, MD, DM

    All India Institute of Medical Sciences (AIIMS, Delhi)
    Ms. Reena Kartha, MS, Ph.D., IndoUSrare and Center for Orphan Drug Research, UMN.

    Reena Kartha, MS, PhD

    IndoUSrare and Center for Orphan Drug Research, UMN

    Dr.Dayaprasad G Kulkarni

    Founder & Director- Aarogya Seva
    Ms. Juhi Naithani, MBA, IndoUSrare and bGlobal Consulting.

    Juhi Naithani, MBA

    IndoUSrare and bGlobal Consulting

    Ratna Dua Puri, MD, DM

    Sir Ganga Ram Hospital
    Mr. K Thangaraj, Ph.D.,Centre for DNA Fingerprinting and Diagnostics (CDFD)

    K Thangaraj, PhD

    Centre for DNA Fingerprinting and Diagnostics (CDFD)

    Dr. Mathew  Thomas

    Former USFDA India Office Country Director

    Summit Advisors


    Ms. Amy Adams, Ph.D.,Institute for Biohealth Innovation, George Mason University.

    Amy Adams, Ph.D.

    Institute for Biohealth Innovation, George Mason University
    Mr. Frank Sasinowski, MPH, JD, IndoUSrare and Hyman Phelps McNamara PC.

    Frank Sasinowski, JD, MPH

    IndoUSrare and Hyman Phelps McNamara PC
    Mr. Rich Bendis, BioHealth Innovation and BioHealth Capital Region Forum.

    Rich Bendis

    BioHealth Innovation and BioHealth Capital Region Forum

    Isaac R. Rodriguez-Chavez, PhD, MHSc, MSc

    4Biosolutions Consulting

    Teresa Ginger Davis

    Sickle Cell Thalassemia Patient's Network (SCTPN)
    Mr. John Newby, JD, Virginia Bio.

    John Newby, JD

    Virginia Bio

    Paul Mehta, MD

    National ALS Registry, CDC/ATSDR

    Vijay Chandru, PhD, FASc, FNAE

    Strand Life Sciences

    Tshaka Cunningham, Ph.D.

    Chief Scientific & Technical Advisor, Athari Biosciences

    Organizing Secretariat

    Nara Govindarajan, MS

    IndoUSrare

    Nisha Venugopal, Ph.D.

    IndoUSrare

    Ramya Karur

    IndoUSrare

    Dr.Ridima Kamal

    Aarogya Seva

    Saundarya MS

    IndoUSrare

    Sponsors 2024

    Gold Sponsors

    Logo of EXCELA Pharma Sciences.

    Silver Sponsors

    Bronze Sponsors

    PITCH4RARE Sponsors

    Logo of pfizer.

    Other Sponsors and Exhibitors

    Logo of amicus.

    Sponsorship Opportunities

    Souvenir Book

    The Indo US Bridging RARE Summit Souvenir will be distributed to all attendees. It showcases speaker profiles, the meeting agenda and special sessions, Sponsors, leadership messages, photographs, Sponsor and exhibitor information, and much more.


    Book An Ad Now!

    Color Advertising Rates (In $) Rates (In ₹)
    Back Cover $1,500 ₹ 75,000
    Inside Cover $500 ₹ 35,000
    Full Page $350 ₹ 20,000
    Half Page $250 ₹ 12,000

    Specifications

    The souvenir book will be designed to have a final size of 8.5”x 11” which will include a ½” border all around. Please follow the below-listed specifications while submitting your ad.

    File Size

    • Full page ad: 7.5” x 10”
    • Half page ad: 3” X 5”

    File Format

    • High-resolution PDF or JPEG ( minimum 300 DPI resolution)
    • All color files must be created using CMYK
    • All files should have embedded fonts.

    Files that do not meet these requirements will not be accepted. Quality of printing will depend upon the sharpness of the images used.

    Submissions

    • Ads may also be emailed to summit@indousrare.org

    LAST DATE FOR SUBMISSIONS: 10 October 2024

    Conference Venue

    Indian National Science Academy ( INSA – New Delhi)

    Indian National Science Academy ( INSA – New Delhi)

    Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

    Accommodation

    The Ashok

    The Ashok

    50, Niti Marg, Diplomatic Enclave, Chanakyapuri, New Delhi, Delhi 110021

    The organizers have blocked rooms at The Ashok at special rates for conference attendees. This is a recommended hotel - please write to the summit Secretariat at summit@indousrare.org to book your accommodation

    Nearby Hotels

    Here are our recommendations for hotels nearby the venue. Attendees are requested to contact the hotels directly to book their stay.

    5 Star Hotels

    The Lalit

    Fire Brigade Lane, Barakhamba, New Delhi, Delhi 110001

    Le Méridien

    Le Méridien, Windsor Pl, Connaught Place, New Delhi, Delhi 110001

    Shangri-La Eros

    19, Ashoka Rd, Janpath, Connaught Place, New Delhi, Delhi 110001

    3 and 4 Star Hotels

    The Hans New Delhi

    Hotel Royal Plaza

    Hotel Gold Regency

    Hotel The Corus

    Hotel Ritz

    Indian National Science Academy
    Bahadur Shah Zafar Marg, Mata Sundari Railway Colony, Mandi House, New Delhi, Delhi, 110002

    Apply for Travel Support

    Travel scholarships for the Indo US Bridging RARE Summit are now open. Apply early as limited slots are available!!

    Apply Now!