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About Indo US Bridging RARE Summit 2024

Connecting the Global Rare Disease Community

We are excited to invite you to the Indo US Bridging RARE Summit 2024 to be held on Nov 16-18 in New Delhi, India.

Organized in collaboration with the All India Institute of Medical Sciences, New Delhi, the #BridgingRare Summit 2024 will feature an exciting lineup of prominent speakers from India and the US, workshops, and a Gala dinner and Award Ceremony.

Why join us?

  • Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D
    • Highly Informative and Educational sessions
    • Great networking opportunities
    • Special focus on India and emerging markets
  • The event will take place in HYBRID mode with live streaming of sessions and an excellent online networking platform.

Poster Presentation

Present Your Research at the Indo US Bridging RARE Summit 2024

This is an excellent opportunity for you to showcase your work and expand your collaborative network by interacting with rare disease stakeholders including our eminent speakers and panelists from US and India.

We welcome Posters across a broad range of themes including:
  • Cross Border Patient Engagement
  • Indo-US Comparisons in Care Pathways - Screening, Diagnosis, & Treatment Options
  • Data Privacy and Governance Across Borders
  • Clinical Trials for Orphan Drugs
  • Advances in Regulatory Pathways for Orphan Products
  • DEIA and Globalization for Orphan Drug Research
  • Others
Poster abstract deadline: June 30th 2024
Join an exciting line-up of speakers!

Attend the the upcoming Indo US Bridging RARE Summit 2024, a hybrid event for combating rare diseases by fostering cross-border collaborations, data sharing, and clinical trials. November 16th to 18th, 2024 New Delhi, India. We invite you to share your knowledge and experience with the global rare disease community as a vibrant speaker.

Be a part of the upcoming Indo US Bridging RARE Summit 2024 a hybrid event and share your experience with the global rare disease community.

Speaker abstract deadline: June 15th 2024

Keynote Speakers

Dr. David A Pearce PhD
President, Innovation & Research, Sanford Health. Chair, International Rare Disease Research Consortium (IRDiRC)
Peter Marks, MD, PhD
Director
Center for Biologics Evaluation and Research (CBER) FDA

Summit Planning Committee

Amy Adams, PhD

Institute for Biohealth Innovation, George Mason University

Rich Bendis

BioHealth Innovation and BioHealth Capital Region Forum

Anish Bhatnagar, MD

IndoUSrare and Soleno Therapeutics

Ashwin Dalal, MD, DM

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Neerja Gupta, MD, DM

All India Institute of Medical Sciences (AIIMS, Delhi)

Madhulika Kabra, MD

All India Institute of Medical Sciences (AIIMS, Delhi)

Reena Kartha, MS, PhD

IndoUSrare and Center for Orphan Drug Research, UMN

Juhi Naithani, MBA

IndoUSrare and bGlobal Consulting

John Newby, JD

Virginia Bio

Ratna Dua Puri, MD, DM

Society for Indian Academy of Medical Genetics (SIAMG)

Harsha Rajasimha, MS, PHD

IndoUSrare and Jeeva Clinical Trials Inc.

Frank Sasinowski, JD, MPH

IndoUSrare and Hyman Phelps McNamara PC

K Thangaraj, PhD

CSIR - Centre for Cellular and Molecular Biology (CSIR-CCMB)

Advisory Planning Committee

Isaac R. Rodriguez-Chavez, PhD, MHSc, MSc

4Biosolutions Consulting

Teresa Ginger Davis

Sickle Cell Thalassemia Patient's Network (SCTPN)

Paul Mehta, MD

National ALS Registry, CDC/ATSDR

Dr. Mathew  Thomas

MTT Consulting

Vijay Chandru, PhD, FASc, FNAE

Strand Life Sciences

Tshaka Cunningham, Ph.D.

Polaris Genomics Inc.

Summit 2023 Recap

The inaugural Indo US Bridging RARE Summit was held at the George Mason University, Arlington, VA on Oct 29- 30 2023.

The Summit featured talks and discussions highlighting the way ahead for global collaborations to accelerate orphan drug development. The event also honored the work of pioneers and stalwarts, Dr. Ishwar Chander Verma and Dr. William A. Gahl as the first recipients of the Abbey Meyers Khushi Bridging RARE Award for their groundbreaking work to foster cross-border collaborations in the field of rare genetic and undiagnosed diseases between US, India, and globally.

The conference attracted over 350 attendees both in person and virtually and received positive feedback and support for the Summit's goals from participants and key stakeholders including US Congressman Gerald Connolly, member of the Rare Disease Congressional Caucus; Senator Mark Warner, Co-chair of the India Senate Caucus; Shri Taranjit Singh Sandhu, Indian Ambassador to the US; and Senator Cindy Hyde-Smith, also a member of the bilateral and bicameral Rare Disease Caucus.

More About Summit 2023

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© Copyright 2024 Indo US Organization for Rare Diseases. All rights reserved. IndoUSrare is a registered 501(c)(3) charity organization
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